World Sickle Cell Day - Gentium HealthCare

A Call to Unite in World Sickle Cell Day

Sickle cell disease (SCD) is a group of inherited red blood cell disorders.

SCD affects millions of people throughout the world and is particularly common among those whose ancestors come from sub- Saharan Africa; regions in the Western Hemisphere (South America, the Caribbean, and Central America); Saudi Arabia; India; and Mediterranean countries such as Turkey, Greece, and Italy.

Since 2008, and we are celebrating World Sickle Cell Awareness Day, aiming to increase public awareness about Sickle cell disease. June, 19th was selected for this awareness day as the General Assembly of the United Nations officially recognized SCD as a public healthcare concerning disease in this date.

As a health care organization continuously striving for a better community and healthier society, GHC Gentium Healthcare decided to donate WORLD SICKLE CELL DAY a symbolic logo to remind the public about the quintessence of the disease. GHC Gentium Healthcare designed this symbol as a factual consequence of the following:

1- Six (6) sickle cell symbolizing all haplotypes for Sickle Cell Disease

  • Senegal (SEN)
  • Benin (BEN)
  • Bantu or Central African Republic (CAR)
  • Cameroon (CAM)
  • Arab-Indian (ARAB)
  • Atypical haplotypes

2- Two strands representing human DNA of 23 pairs

3- Sickle Cell Disease mutation marked by red stain on chromosome number 11.

GHC Gentium staunchly believes in unity and community. With One Emblem, let us unite on World Sickle Cell Day.

References:

Loggetto SR. Sickle cell anemia: clinical diversity and beta S-globin haplotypes. Rev Bras Hematol Hemoter. 2013;35(3):155-157. doi:10.5581/1516-8484.20130048https://www.cdc.gov/ncbddd/sicklecell/documents/SCD-factsheet_What-is-SCD.pdf

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Adherence And Persistence Programs - Gentium Healthcare

Adherence And Persistence Programs

For many chronic diseases, treatment outcomes largely depend on the active participation of patients in their treatment(Demoly et al. 2016). However, as ChesneyMargaret points out in Volume 30 of the Clinical Infectious Diseases of June 2000, nonadherence to medications remains widespread among patients with chronic diseases. This is widely evident in clinical practice and trials worldwide.  

Researchers have determined that patients fail to keep up with their medication or treatment plans because of forgetfulness, perceived lack of efficacy of the medication and many other reasons. More specifically, a report published by the American Medical Association identifies fear of potential side effects as a critical reason for intentional nonadherence. The report further says that the cost of medication, lack of understanding of the need for medication, delayed results and the nature of side effects also have an impact on adherence to medication.

Since most treatment regimens may not be successful without patients’ active participation, interventions that encourage adherence are key to achieving better treatment outcomes and improving people’s quality of life overall. These should cut across scheduling of appointments for patients and dose reminder calls,to designing of customized adherence plans for different patients.

References

Chesney, M.A., 2000. Factors affecting adherence to antiretroviral therapy. Clinical Infectious Diseases30(Supplement_2), pp.S171-S176.

Demoly, P., Passalacqua, G., Pfaar, O., Sastre, J. and Wahn, U., 2016. Patient engagement and patient support programs in allergy immunotherapy: a call to action for improving long-term adherence. Allergy, Asthma & Clinical Immunology12(1), p.34.

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Affordability Models - Gentium Healthcare

Affordability Models

Patients and members of the general public are generally more willing to pay for healthcare services and interventions that they consider to be of higher or greater value. The more highly valued the healthcare intervention, the more willing people will be to pay for it(Smith & Cunningham2004).

However, the high cost of treatment remains a major challenge for patients worldwide. Diagnosis of diseases like cancer, for instance, can bring with it substantial financial worries for many patients, with nearly 75 percent of cancer patients reported experiencing subjective economic distress(Yezefski et al. 2017). 

In the Seminars in Hematologypublication, Todd Yezefski and colleagues observe that High out-of-pocket spending on cancer drugs, like for most other chronic diseases, is known to contribute to financial problems among patients, with these costs seemingly only increasing. This apparently underscores the glaring importance of enhancing access to medicines by making them more available and affordable, though this goal remains a major global public health challenge.

One of the best ways to address this problem is to coordinate between patients, payers and pharmaceutical manufacturers and design tailored “Shared Contribution Models” that address particular barriers to treatment financial affordability. This should involve manufacturers, distributors, and pharmacies to warrant a seamless and timely patients’ access to their treatment in accordance with various local and global regulations guiding the practice.

References

Smith, A.S.A., and Cunningham, S.J., 2004. Which factors influence willingness-to-pay for orthognathic treatment?. The European Journal of Orthodontics26(5), pp.499-506.

Yezefski, T., Schwemm, A., Lentz, M., Hone, K. and Shankaran, V., 2017, September. Patient Assistance Programs—A valuable, yet imperfect, way to ease the financial toxicity of cancer care. In Seminars in Hematology. WB Saunders.

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Caregiver Support Programs - Gentium Healthcare

Caregiver Support Programs

To improve treatment outcomes and overall quality of life is often the primary goal of any treatment plan for people with chronic or life-changing health conditions. Being associated with severe effects on the patient’s quality of life and high rates of nonadherence, treatment outcomes of these diseases heavily depend on the level and quality of support the patients get. Caregivers play a critical role in providing their sick family members with the required support in the form of physical, emotional, and moral care.

According to Lloydet al. (2017), patients of such diseases as schizophreniathat require long-term treatment can experience a better quality of life with antipsychotic medications which tend to ameliorate some symptoms over time, though individual responses differ.

There are those who will discontinue medication because of debilitating side effects or poor efficacy. In such cases, caregivers provide the much-needed support to ensure the patient follows through with the recommended and treatment plan as agreed upon by both the patient and the physician.

Caregiver support programs are therefore crucial as they provide caregivers with the training, educational resources, and multiple tools they (carers) need to perform their role successfully.

References

Lloyd, J., Lloyd, H., Fitzpatrick, R. and Peters, M., 2017. Treatment outcomes in schizophrenia: qualitative study of the views of family carers. BMC Psychiatry17(1), p.266.

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Customized CME Programs - Gentium Healthcare

Customized CME Programs

Research has indicated that continuing medical education has the huge potential to improve physician performance. In a 2015 study published in the Journal of the American Academy of Dermatology, a group of researchers found that the CME activity under study led to significantly improved documentation of patient’s history, shared decision making, and patient counseling for lifestyle behaviors among the medical practitioners in the study population.

Continuing medical education generally consists of educational activities that serve to maintain, develop and/or increase a physician’s knowledge, hone their skills, and improve their professional performance. CME also improves the way physicians relate with patients, fellow professionals, and the public as they provide services.

According to the Keck School of Medicine USC, continuing medical education utilizes materials and events that address professional practice gaps in the community while fostering physicians and other practitioners’ continuing professional development. It enables individuals to satisfy licensure requirements and eventually leads to improved outcomes in patient health care.

Effective CME programs must provide relevant, evidence-based medical education within various clinical focus areas. This may entail the application of educational best practices and modern technology to optimize the development of the knowledge, skill-set, and building capacity that healthcare professionals require in order to perform safe and effective patient care.

References

Davis, N., Davis, D. and Bloch, R., 2008. Continuing medical education: AMEE education guide no 35. Medical teacher30(7), pp.652-666.

Gist, D.L., Bhushan, R., Hamarstrom, E., Sluka, P., Presta, C.M., Thompson, J.S. and Kirsner, R.S., 2015. Impact of a Performance Improvement CME activity on the care and treatment of patients with psoriasis. Journal of the American Academy of Dermatology72(3), pp.516-523.

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Care Pathway Management - Gentium Healthcare

Care Pathway Management

The process followed in the treatment of a particular disease significantly determines patient outcomes. The process depends on the nature of the condition or specific needs of the patient. It is important to optimize this process, otherwise referred to as a care pathway, by improving the quality and efficiency existing in healthcare, cooperation between healthcare professionals, and eventually patient satisfaction. According toAgarana& Olokunde (2015), care pathways help health professionals to identify the right steps to take during treatment, largely because healthcare needs are unique to each patient.

Optimizing the care pathway often comes with the challenge of unclear cost-effectiveness even as new technologies offer the promise of improved outcomes.De Vries et al. (2007) also identify co-morbidity, cognitive impairments, poly-pharmacy, emotional problems, sensory impairment, functional limitations, and lack of social support as some of the problems that medical and nursing staff in oncology for older cancer patients face in their care pathway management process.

Although there is no one-size-fits-all solution for the challenges facing clinicians in optimizing the care pathway today, Brufsky& Lokay (2013) found in a study that clinical pathways program rooted in patient-specific web-based decision support tool can help reduce unnecessary variability and drive adherence to evidence-based medicine eventually decreasing the growth in cancer care costs.

References

Agarana, M.C., and Olokunde, T.O., 2015. Optimization of Healthcare Pathways in Covenant University Health Centre Using Linear Programming Model. Far East Journal of Applied Mathematics91(3), p.215.

Brufsky, A. and Lokay, K., 2013. How to develop and deliver pathway-based care. Hematology/Oncology Clinics27(4), pp.843-850.

De Vries, M., van Weert, J.C., Jansen, J., Lemmens, V.E. and Maas, H.A., 2007. Step by step development of clinical care pathways for older cancer patients: Necessary or desirable?. European journal of cancer43(15), pp.2170-2178.

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Digital Healthcare Solutions - Gentium Healthcare

Digital Healthcare Solutions

Healthcare innovation has been touted as the ultimate means to facilitate the participation of patients in the care delivery process. Recently, these innovations have leaned towards exploring digital health as a major way to enhance user participation in the process of delivering health care. As Iyawa et al. (2016) point out, digital health provides a platform that is replete with digital technologies that patients can rely on to facilitate their participation in healthcare delivery.

There are various innovative approaches that research has identified, which could help improve current health models. With mobile internet usage has surpassed PC, the mobile platform is just the place where innovators should concentrate their efforts and create more digital solutions that are accessible on smartphones and other mobile devices. Alqahtani& Atkins(2017) argue that people are more familiar with the apps and tools they frequently use. The smartphone has popular usage and creating mobile-only digital healthcare solutions can be an effective way to encourage the use of outpatient services.

It is important therefore to develop digital platforms including social media for patients and Healthcare Professionals, that are tailored according to various client needs. This is the best way to use digital mobile informatics technologies to improve patient outcomes.

References

Alqahtani, M.M. and Atkins, A.S., 2017. Consumerization of Outpatient Informatics with Mobile Health Framework: A Case Study. Procedia Computer Science110, pp.222-229.

Iyawa, G.E., Herselman, M. and Botha, A., 2016. Digital health innovation ecosystems: From a systematic literature review to the conceptual framework. Procedia Computer Science100, pp.244-252.

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Healthcare Environmental Safety - Gentium Healthcare

Healthcare Environmental Safety

Though hospitals and healthcare facilities are set aside to provide therapeutic care and as such are supposed to be safe, such environments include certain and potential dangers. In his “Hospital Risk Assessment” publication of 2011, writer Bill Moran identifies hazardous chemicals, radioactive material, chemotherapeutic drugs and infectious matter as some of the potential hazards that threaten safety in the hospital environment. He further explains this to be the reason why United States’ Occupational Safety and Health Administration enforces rules to ensure protection against people’s exposure to such hazards(Moran 2011).

Research shows that healthcare environmental safety applies to not just the patients and hospital staff alone. Rather, the safety measures help protect the public too from physical and any other harm on a day-to-day basis as well as in the event of unusual occurrences. Moran (2011) identifies bioterrorism attacks, natural viral epidemics and accidents as some of the infrequent incidents that have serious impacts on healthcare environmental safety upon their occurrence. Any of these circumstances could result in overcrowding of the healthcare environment, panic or spread of disease.

Environmental safety measures are therefore crucial and should take a proactive approach – always prepared to take care of both unprecedented and day-to-day circumstances(Lundstrom et al. 2002). This is best achieved by implementing a system that provides the safest and best quality of care to the patients. A safe healthcare facility operates in compliance with both local and global standards of safety.

References

Lundstrom, T., Pugliese, G., Bartley, J., Cox, J., and Guither, C., 2002. Organizational and environmental factors that affect worker health and safety and patient outcomes. American journal of infection control30(2), pp.93-106. Moran, B., 2011. Hospital Risk Assessment: Environmental Health and Safety Compliance, and Physical Security Standards. Risk Assessment and Management. Available at:  http://compliance.com/publications/hospital-risk-assessment-environmental-health-and-safety-compliance-and-physical-security-standards/

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The Value Of Outreach Awareness Programs - Gentium Healthcare

The Value Of Outreach Awareness Programs

For most chronic and life-threatening diseases like cancer, early detection can mean that the patient will seek therapy in good time and control disease progression. This can be extremely effective in preventing such diseases from reaching their fatal stages.

In a study, Gadgil et al., 2017 found that breast awareness efforts in a cohort of women-led to early diagnosis of breast cancer and reduced fatality in a two-year intervention period. Apparently, efforts to improve breast awareness and access to care for women of different ages indicate early detection and more conventional treatment of breast cancers. Overall, creating awareness and improving access to healthcare has the potential to result in significant down-staging of cancer. This is one major role of outreach awareness programs with regards to cancer.

Outreach awareness programs are not limited to cancer cases alone, as Ndiaye et al. (2003)report. Outreach programs make health education available in the areas of disease prevention, screening, and early detection various life-threatening diseases through partnership programs. The programs involve communities and help members to learn about resources and acquire knowledge that they can then share further with others in these communities.

With such programs in place, early detection and diagnosis of disease is possible, leading to increased survival rates and better disease control and treatment outcomes.

References

Gadgil, A., Sauvaget, C., Roy, N., Muwonge, R., Kantharia, S., Chakrabarty, A., Bantwal, K., Haldar, I. and Sankaranarayanan, R., 2017. Cancer early detection program based on awareness and clinical breast examination: interim results from an urban community in Mumbai, India. The Breast31, pp.85-89.

Ndiaye, S.M., Quick, L., Sanda, O. and Niandou, S., 2003. The value of community participation in disease surveillance: a case study from Niger. Health Promotion International18(2), pp.89-98.

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Patient Centricity - Gentium Healthcare

Patient Centricity

Today’s product marketplace is hugely customer-centric, with most businesses already competing largely on the basis of the customer experience. The healthcare industry cannot stand on the side and ignore this reality. Patients are just like customers in the product market. As Druckenmiller(2016) observes in the Ask Eva Blog, itis no longer optional for healthcare providers to provide patients with exceptional service. Already, engaging patients in pharma is transforming the industry in significant ways(Gosling 2016).

The patient is the end user in the pharmaceutical marketplace. Notably, engaging patents is a major way for pharmaceutical companies to gain patient insight that they can use to deliver better products and services then. This could lead to increased adherence to medication and better usage of these products overall. The industry ends up becoming more profitable while everyone else enjoys the benefit of better care and improved treatment outcomes (Gosling 2016).

Though there are companies that remain reticent to commit fully to the transformation, a lot of others have registered enormous success in pharma by embracing patient centricity in the development of medicines. The sooner the companies accept the importance of the patient factor in boosting the success of the pharmaceutical process the better. The industry simply can no longer skip patient engagement.

References

Druckenmiller, G. 2016, May 5. What Is the Patient Engagement Journey and Why Is It Important?Ask Eva Blog

Gosling, H., 2016. Patient-centricity: Ghost in the machine. PharmaTimes magazine.

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